On Wednesday January 18, ten parents who attend the Metropolitan Parent Center’s (MPC) support group participated in a workshop about how to use the Internet. The third floor of Sinergia has a library available for parents along with a computer area adjacent to the library that has a number of computers available to parents, so we were able to give them direct, hands-on instruction. The workshop was conducted in Spanish and covered everything about identifying the components of a computer: the tower, monitor, keyboard, and mouse, and what their functions are. This was done because the majority of the parents have little or no computer literacy skills so it was important that they knew some basics on how computers work. In addition, most of the parents do not have computers at home. The parents were also offered some basic information about the Internet, including how to log on and how to make inquiries using the Google search engine. Because they are all parents of children with disabilities, we practiced how to find information about their children’s disabilities (i.e., autism, Down syndrome, cerebral palsy.) They were shown that they could write questions in Spanish and would be given responses in Spanish. The MPC promotes the fact that in order for parents to be effective advocates, they need to learn how the disability affects their children’s ability to learn in the classroom.
Parents also received information about parental controls that protect children from being able to access inappropriate or dangerous Internet web sites. While the parents may lack computer and Internet skills, their children are very knowledgeable on that subject so some time was dedicated to showing the class how to check on the websites children have visited via the “history tab” in the Firefox, a popular web browser available to Internet users. A list of free downloadable parental control software was provided to parents, and some links are provided below. Overall, the parents enjoyed this workshop very much and expressed great interest in future opportunities to learn about, and be able to use the Internet as a tool to further their understanding about disabilities.
Free Parental Control Software
1. K9 Web Protection - K-9 blocks websites in more than 70 categories, including pornography, gambling, drugs, violence/hate/racism, malware/spyware, phishing
2. Parental Control Bar - Free software that helps concerned parents prevent their children from accessing adult-oriented web sites.
3. Action Alert - Creates a kid-safe PC with filtering and website blocking and permits parents to review activity to determine whether anything suspicious occurs.
4. KidsWatch - Allows parents to set computer usage time limits by child and blocks access to dangerous and inappropriate websites. It alerts parents immediately when a child steps outside the boundaries of safe surfing. KidsWatch™ will automatically send you e-mail alerts when your child enters or receives a suspect phrase or keyword from any chat conversation.
Free Parental Control Software in Spanish (Controles Para Padres en español)
1. Naomi - Un programa para bloquear páginas web inadecuadas, dirigido a menores de edad que están expuestos en la red, con contenidos como por ejemplo pornografía, etc. Cada vez que se intente acceder en forma voluntaria o accidental a una página inadecuada el navegador se cerrará rápidamente.
2. Time Sheriff - Permite administrar las horas que pasan sus hijos en la computadora. Time Sheriff puede limitar el tiempo de sesión de usuarios, prevenir la ejecución de juegos, navegadores y programas de mensajería instantánea.
3. PC Lock Station - Un programa que permite monitorizar y limitar las actividades de un usuario frente a la PC. Permite establecer límites a la navegación por sitios inapropiados, definir horarios o tiempos máximos de uso.
4. Amigo Control Parental - Este programa graba lo que se ve en la pantalla en todo momento para que después un padre pueda comprobar qué ha estado haciendo su hijo en la computadora. Es más, puede leer lo que ha escrito y lo que su hijo ha leído.
Showing posts with label Parent Center. Show all posts
Showing posts with label Parent Center. Show all posts
Monday, January 30, 2012
MPC holds workshop on Behavior Management Techniques for students with ADHD
Despite the cold weather, on January 20, more than twenty-five parents attended our workshop on Behavior Management. Miriam Cusicanqui, a supervising social worker at St. Luke’s Roosevelt Hospital shared behavior strategies with parents. The strategies demonstrated were based on years of research in behavior development and they included:
The MPC can help with implementing these strategies in your child’s school by contacting our intake coordinator at (212) 643-2840 ext. 336.
Are We Over-relying on Medication To Treat Behavioral Problems?
The over-reliance of medication to treat behavioral problems is becoming a rampant problem for individuals with disabilities. Recently the NY Times focused on the problem in state run group homes in its article “In Treating Disabled, Potent Drugs and Few Rules.” The psychologist interviewed felt that medication does not address the underlying problem and that the behaviors could best be addressed by therapy. Lizabeth Pardo, an attorney in the Metropolitan Parent Center (MPC), sees this pattern in our schools. Many of her clients with ADHD are on medication but are not getting any type of behavior therapy privately or getting sufficient support through a behavior intervention plan at school. The workshop we presented is one way Sinergia is educating parents about behavior therapy to ensure their children are getting the proper care.
- Parent–child relationship, restoring and nurturing that relationship with positive feelings and building self-esteem.
- Increasing desirable behaviors through praise, acknowledgement and incentives, including the use of behavioral charts.
- Managing non-compliance, including the use of time-outs or other types of consequences.
The MPC can help with implementing these strategies in your child’s school by contacting our intake coordinator at (212) 643-2840 ext. 336.
Are We Over-relying on Medication To Treat Behavioral Problems?
The over-reliance of medication to treat behavioral problems is becoming a rampant problem for individuals with disabilities. Recently the NY Times focused on the problem in state run group homes in its article “In Treating Disabled, Potent Drugs and Few Rules.” The psychologist interviewed felt that medication does not address the underlying problem and that the behaviors could best be addressed by therapy. Lizabeth Pardo, an attorney in the Metropolitan Parent Center (MPC), sees this pattern in our schools. Many of her clients with ADHD are on medication but are not getting any type of behavior therapy privately or getting sufficient support through a behavior intervention plan at school. The workshop we presented is one way Sinergia is educating parents about behavior therapy to ensure their children are getting the proper care.
Tuesday, January 3, 2012
Recap: 507 Plan & 1115 Waiver Presentation
On December 7, 2011 Sinergia was very pleased to welcome Katherine Bishop (above) from the Office of People with Developmental Disabilities (OPWDD), People First Waiver Unit. Ms. Bishop made a comprehensive presentation to a standing room only audience on the 1115 Waiver at Sinergia's Metropolitan Parent Center. In collaboration with the Manhattan Neighborhood Network, the presentation was taped and it aired on January 1, 2012 on their cable channels. The forum was simultaneously translated into Spanish and power point presentations were available in both languages.
Ms. Bishop led the discussion of the major redesign of the OPWDD system to better support people’s health, life skills and personal outcomes through increased flexibility, person centered services, care coordination and modernization of the financial platform. The lynchpin of the transformation will include development of entities that will be called Developmental Disabilities Individual Support & Care Coordination Organizations (DISCO). They will be not-for-profit fiscal intermediaries and providers of care coordination, which receive all payments and may be direct providers and/or subcontract all needed services, including health care.
There was an extensive question and answer period where parents and providers were able to ask key questions about this future waiver which will have a major impact on the way that services will be delivered. To get more information on People First Waiver visit their webpage: www.opwdd.ny.gov/2011waiver. Our appreciation is extended especially to Katherine Bishop and to MNN, the interpreters and staff at Sinergia for making this event possible so that both English and Spanish speaking parents become aware of these significant changes in the OPWDD system and how they will affect their children and adults with developmental disabilities.
Ms. Bishop led the discussion of the major redesign of the OPWDD system to better support people’s health, life skills and personal outcomes through increased flexibility, person centered services, care coordination and modernization of the financial platform. The lynchpin of the transformation will include development of entities that will be called Developmental Disabilities Individual Support & Care Coordination Organizations (DISCO). They will be not-for-profit fiscal intermediaries and providers of care coordination, which receive all payments and may be direct providers and/or subcontract all needed services, including health care.
There was an extensive question and answer period where parents and providers were able to ask key questions about this future waiver which will have a major impact on the way that services will be delivered. To get more information on People First Waiver visit their webpage: www.opwdd.ny.gov/2011waiver. Our appreciation is extended especially to Katherine Bishop and to MNN, the interpreters and staff at Sinergia for making this event possible so that both English and Spanish speaking parents become aware of these significant changes in the OPWDD system and how they will affect their children and adults with developmental disabilities.
Friday, July 29, 2011
Making The Most of the Parent Teacher Conference
You and your child’s school have something in common: both of you want your child to learn and do well. Parent Teacher Conferences are an important component of the ongoing dialogue between families and schools, so when talking with your child’s teacher, remember that both of you have valuable information to share, and both of you can learn something new to help your child. The Parent Teacher Conference is a two-way conversation and good outcomes are achieved when both parents and teachers talk and listen. There should be an emphasis on learning and a focus on both how well the child is doing in school, as well as how your child can do better. Opportunities and challenges should also be discussed.
Parent Teacher Conferences typically occur before a child's first marking period, when they receive their report cards. That means the first one will happen just before Thanksgiving, but parents do not have to wait until then. They can ask teachers for a conference at any time. They can also make the request in writing, if they wish to document it.
Cassandra Archie, Co-Director of the Metropolitan Parent Center suggests that the first Parent Teacher Conference be scheduled at the end of September, and below are some questions that parents should ask teachers to understand if their child is starting out properly.
Talk to your child’s teacher about:
- Progress – how is your child doing. Is my child performing at grade level? What do you see as his/her strengths? How could he or she improve?
- Assignments and assessments. Ask to see examples of your child’s work. Ask how the teacher gives grades.
- Your thoughts about your child. Tell the teacher what your child is good at. Explain what your child needs.
- Support learning at home. Ask what you can do at home to support your child’s learning.
- Support learning at school. Ask how the teacher will both challenge and support your child when they need it.
- Make a plan - Write down the things you and your teacher will each do to support your child. Make plans to check in with the teacher in the coming months.
- Schedule another time talk – There are many ways to communicate, in-person, by phone, notes, email. Be sure to schedule a time to talk.
- Talk to your child. If appropriate talk with your child, don’t forget to include him or her.
For more info visit The Harvard Family Research Project – Parent Teacher Conferences: A Tip Sheet for Parents www.hfp.org
Wednesday, February 9, 2011
Metropolitan Parent Center January Highlights
Sinergia's Metropolitan Parent Center had a busy month in January! Here are some highlights.
Improving Spanish Translations for Special Ed
It was selected to participate on a Spanish Glossary Project Review Team that met on January 24 & 25, in Washington, D.C. The intent of this project, which is funded by the Office of Special Education Programs (OSEP), is for team participants to review Spanish translations of special education terms and phrases and come to a consensus of which of the words are the most appropriate that will then compiled and distributed to Parent Centers throughout the United States that work with diverse Spanish speaking communities. It was a demanding task that required that a panel of 16 individuals from diverse areas of the country, working in groups of four to review and revise glossary terms located in a 44-page document. Each group engaged in conversations, discussed their opinions and arrived at a consensus regarding the words assigned to the group. Afterward each group reported on their findings and sought the consensus of the other groups in order to determine which terms and phrases were the most appropriate one.
Technology and Leadership Training
A few days after that Godfrey Rivera and Cassandra Archie, the Co-Directors of the MPC, attended the National Parent Technical Assistance Center's ALLIANCE Technology and Leadership & Management Institutes, which took place in Washington, D.C. on January 26 & 27. Mr. Rivera attended a variety of sessions on website content management systems, webinars and collaborative online workgroups (i.e. Wikis, Big Tent and Ning) at the Technology Institute. Ms. Archie on the other hand learned about effective management leadership strategies, motivating staff, and compliance issues for implementing grants at the IBM Management Institute.
Using Technology to Help Parents
Finally, later in the month, the MPC was also selected to participate in a Technology Leadership Initiative which consisted of representatives from six Parent Training and Information Centers (PTICs) and two Community Parent Resource Centers (CPRCs). The chosen Parent Centers were from NYC, Tennessee, Louisiana, Pennsylvania, South Dakota, California, Pennsylvania and Colorado. This is a three-year project whose task is to develop a model on how to use technology to enhance Parent Center's ability to meet their missions of helping families of children with disabilities and to serve as mentors to training other parent centers. There was a training session on January 28 where participants met each other, the technology consultant, John Kenyon, and started to outline the project by articulating benchmarks and goals.
Improving Spanish Translations for Special Ed
It was selected to participate on a Spanish Glossary Project Review Team that met on January 24 & 25, in Washington, D.C. The intent of this project, which is funded by the Office of Special Education Programs (OSEP), is for team participants to review Spanish translations of special education terms and phrases and come to a consensus of which of the words are the most appropriate that will then compiled and distributed to Parent Centers throughout the United States that work with diverse Spanish speaking communities. It was a demanding task that required that a panel of 16 individuals from diverse areas of the country, working in groups of four to review and revise glossary terms located in a 44-page document. Each group engaged in conversations, discussed their opinions and arrived at a consensus regarding the words assigned to the group. Afterward each group reported on their findings and sought the consensus of the other groups in order to determine which terms and phrases were the most appropriate one.
Technology and Leadership Training
A few days after that Godfrey Rivera and Cassandra Archie, the Co-Directors of the MPC, attended the National Parent Technical Assistance Center's ALLIANCE Technology and Leadership & Management Institutes, which took place in Washington, D.C. on January 26 & 27. Mr. Rivera attended a variety of sessions on website content management systems, webinars and collaborative online workgroups (i.e. Wikis, Big Tent and Ning) at the Technology Institute. Ms. Archie on the other hand learned about effective management leadership strategies, motivating staff, and compliance issues for implementing grants at the IBM Management Institute.
Using Technology to Help Parents
Finally, later in the month, the MPC was also selected to participate in a Technology Leadership Initiative which consisted of representatives from six Parent Training and Information Centers (PTICs) and two Community Parent Resource Centers (CPRCs). The chosen Parent Centers were from NYC, Tennessee, Louisiana, Pennsylvania, South Dakota, California, Pennsylvania and Colorado. This is a three-year project whose task is to develop a model on how to use technology to enhance Parent Center's ability to meet their missions of helping families of children with disabilities and to serve as mentors to training other parent centers. There was a training session on January 28 where participants met each other, the technology consultant, John Kenyon, and started to outline the project by articulating benchmarks and goals.
Thursday, February 3, 2011
New Workshop For Parents of Deaf-Blind Children
Sinergia's Metropolitan Parent Center (MPC) has entered into collaboration with the New York Deaf-Blind Collaborative (NYDBC) to provide a training space and information on education advocacy for a group of parents of children with Deaf-Blindness. The NYDBC is a federally funded project which provides technical assistance to improve services for children and youth who are deaf-blind (ages 0-21.) The NYDBC has a program called Parent Leadership Training that will teach parent skills to prepare them to be advocates for their children, learn about their rights and how to access/obtain services and resources in their own communities. The MPC has provided the Nivia Zavala Conference Center to the NYDBC so that they can conduct their Parent Leadership Program. The first session took place the weekend of January 22 & 23. Nine parents participated, including three married couples. There will be other weekend sessions taking place in March (for Spanish-speaking parents) and in April. In addition to providing a training space, the MPC will be offering presentations on education advocacy for parents which focus on how parents can be effective advocates for their children and for other families and become empowered in the process.
Sunday, January 2, 2011
2010 in Review - Sinergia's Department & Program Highlights
Metropolitan Parent Center (MPC)
Families and parents make our work possible, and as we look back at 2010 we would like to say thank you to the many families who contacted the MPC for information or assistance - your child is our first priority. To the 1,739 parents and professionals who attended our 48 workshops and trainings, we trust that your time was well spent and we provided you with valuable information, tools and strategies along with opportunities to connect and network. To the 35,978 individual parent and professional contacts through calls, letters, e-mails and meetings, we strived to work hard on your behalf. To the parents that attended the 26 parent support group sessions throughout the year, we are so thankful that through the generosity of the Brick Presbyterian Church and skills of William Bird Forteza our facilitator, you were able to share and learn from one another. Thank you to everyone who visited our website in 2010. We hope you will visit our re-designed webpage to be completed in January and which will be made easier for you to find information, and is a one-stop venue for special education and general education information and resources. For the 8,067 parents and professionals who received our newsletter, we thank you for staying informed monthly. To the parent volunteers, your assistance was invaluable and we appreciate the giving of your valuable time. To the 989 infants, children and youth with the full range of disabilities we served in 2010, we will continue to support you as needed. To those families and professionals who find their way to us in 2011, we look forward to providing you with quality service as a Center of Excellence For Latino Family Engagement.
Autism Initiative
Sinergia’s Autism Initiative Program has continued to grow in 2010 and is currently serving almost 300 families of children with autism spectrum disorders, the majority of which are Latino and Spanish-speaking families. The Autism Initiative Program has also developed collaborations with a number of organizations and individuals that have provided our families and parents with productive and effective tools in the areas of resources and workshops. These individuals and organizations include scientists and researchers, art educators, school administrators, therapists and a chef/nutritionist. There were nine workshops conducted in 2010 that offered information on areas including sensory integration therapy, dietary interventions and alternatives, siblings of children with autism issues and transforming everyday activities into learning activities. The Autism Initiative Program also featured monthly events called “Breakfast Encounters” where parents share their stories, challenges and successes regarding raising children with autism spectrum disorders.
Medicaid Service Coordination (MSC)
During the past year the MSC program experienced a major restructuring due to the financial crisis. Nevertheless during this time the program provided 2841 units of service to 327 individuals with intellectual disabilities in the boroughs of Manhattan, the Bronx, Brooklyn and Queens. The ten MSC staff members helped individuals to meet their goals and desires, to find and keep a home, we linked them to search for jobs, participate in recreational activities, build a circle of friends and to gain access to medical, clinical, and entitlement programs such as Social Security, food stamps. We also assisted families in the guardianship process and in securing other needed services. The MSC staff attended numerous mandated trainings provided through OPWDD and Sinergia, to ensure that disabled individuals as well as their families were able to secure the services and supports they needed. Through these efforts a staff member was able to find a work program for a consumer who had stayed at home the previous six years without engaging in daily activities. Also the program arranged for summer camps for some individuals who had never had a camp experience. Despite having to adapt to new regulations, larger case loads, restructuring (which allows for less time to visit), accompanying and advocating for individuals, the MSC Department continues to engage with and assist individuals with intellectual disabilities to make progress that will lead to more enriched, independent lives.
Residential Services
From January 1, 2010 through December 31, 2010 the Residential Services Program provided over 60 individuals with developmental disabilities with residential services in 38 residential opportunities. These ranged from supervised and supported certified individualized residential alternatives to less restrictive individualized support services in the community. In addition to the residences, Sinergia provided 78,097 hours of direct service to help individuals enhance their daily living skills, ensure their health and safety , oversaw their nutritional needs, budgeting, medication administration, and promoted their independence and integration into the community. Pursuant to our goals of promoting greater independence and increasing the quality of life of individuals, several relocations were made during the year which provided for persons to have their own bedrooms and to move to better, newly built residences. The staff of approximately 65 employees in this department constantly attends development sessions so that they can meet regulatory demands and most importantly so they can meet the individual needs of the residents and enhance their quality of life in community settings.
Day Habilitation Services
In Sinergia’s Day Habilitation Program, consistency is an important foundation for progress. While changes in scheduling can be disruptive to the program, the participants demonstrated how well they could adapt to a very big change in February 2010. On Monday, February 1st, Day Habilitation began its program at 2082 Lexington Avenue, on 126th street. After much anticipation and fanfare, Sinergia’s brand new building was ready. That day and the several weeks since then, the members have shown that they don’t adapt to new surroundings by trial and error, but by trial and victory! They quickly learned new transportation routes and braved new bus rides home. When the new elevator was being repaired, they climbed the stairs or took the alternate elevator. It’s as though every participant was determined to make 2082 Lexington a new home. While the neighborhood in Harlem is very different than it was at 29th Street, the participants have embraced change and used it as a springboard for adventure. Day Hab. Groups have volunteered at the Carver Garden on East 124th St., growing fresh vegetables and learning how to prepare them. They’ve visited the library, shopped at the Brand New Mall on 116th St. with Manhattan’s first Target, walked to Yankee Stadium,
gone swimming at the local public pools, and played basketball and football games at the park on 130th St. The new location hasn’t been an impediment to continuing past activities like Encore Meals on Wheels or exercising at the YMCA and Riverside Park. Life at Lexington Ave. has continued as usual with fun activities and adventurous new excursions. Some participants volunteered at the Brooklyn Animal Resource Coalition Shelter, walking homeless dogs and caring for lonely cats. In July, some participants went “Walking with the Dinosaurs” at Madison Square Garden. They visited exciting places like Rye Play land, Brooklyn Botanical Garden, and Coney Island, also had fun closer to home, barbecuing in a local park and picnicking in the garden. The new spacious conference room on the fourth floor was the perfect place for the first Volunteer Award Ceremony and Spring Art Exhibit, as well as the annual Thanksgiving Lunch on November 24th. Day Hab also observed Black History Month and Hispanic Heritage Month with informational celebrations, premiered their first Photography Exhibit, and had a costume party for Halloween. The participants are now looking forward to holiday celebrations in December and the Dinner Dance in January. With the coming of the New Year, Day Hab will continue taking on new challenges and adventures in stride. It’s what they do!
Family Care
Family Care is a program in which individuals, including children with developmental disabilities are placed in the care of families in homes within the community. The services are supplemented by a team composed of a Family Care coordinator, Family Care Provider(s), Medicaid Service Coordinators and a nursing team which provides medical care and intervention to consumers in the program. The program currently serves 10 children and adults. Currently there are two prospective consumers that are in the process of being admitted into the program. Out of the ten consumers in the program, only five of them have parents, relatives or legal guardians who are very involved in their care and well being. These family members have expressed great satisfaction with the care that their family members are receiving from the family care providers. Family care providers are unsung heroes; some have opened their homes to individuals since their infancy and have amassed 20 years as providers. The dedication of these families is extraordinary and Sinergia gratefully acknowledges their contribution to the lives of individuals in the Family Care Program. Our annual Family Care luncheon on July 29, 2010 was a testament and expression of gratitude to the five providers and two respite providers for all the care and nurturance they provide throughout the year in their homes and community.
Family Support (FS)
The Family Support Case Management programs “Direction Services and East Harlem Service Coordination” served 139 families and provided over 3556 hours of case management in 2010. Medicaid isn’t required for FS programs, therefore we are able to serve families that do not have Medicaid and would otherwise remain unserved. During this year we were able to obtain medical, clinical, entitlements, special education, recreational and OPWDD services for the individuals served by the program. One family in desperate straits with a physically handicapped mother who had suffered an amputation with a severely disabled child was able to receive emergency services, respite and OPWDD housing after they were evicted from their home. Another family was assisted with funds to pay rent arrears in order to forestall an eviction. We also referred families for reimbursement for clothing, furniture and other necessities. Most recently we assisted families that don’t qualify for Medicaid because of their income with the Medicaid Waiver enrollment. This enables the family to get prescriptions and medical services not covered by their health insurance as well as OPWDD waiver services. After more than 25 years this program still remains a lifeline for families with children or family members with developmental disabilities. Family Support Services are indispensable for families that need help and struggle to maintain their children and adult family members with disabilities in their own homes.
Family Reimbursement
Sinergia’s Family reimbursement Program is a Family Support Service funded by the NYS Office for People with Developmental Disabilities (OPWDD) and serves families in the Bronx and Brooklyn who have a person with developmental disabilities living at home. The program offers reimbursement funds for the purchase of goods, services and necessities to help the member with disabilities to stay living in the home. In 2010 Sinergia awarded a total of $27,000 in reimbursement funds to 69 families which covered respite care, camp and recreational opportunities, medication, equipment, needed furniture, music therapy. This is a fund of last resort and due to limitations in funding, priority is given to emergencies and to families with very restrictive incomes.
Educational Advocacy
The family support educational advocacy is a program funded by the New York State Office of People with Developmental Disabilities for families living in Manhattan who have children with developmental disabilities. In 2010 we were tremendously satisfied to have been able to help 25 families and provided over 600 hours of intense advocacy to help parents of children with disabilities obtain a great deal of information and guidance so that their children could receive appropriate educational services. Sinergia’s educational advocate was able to assist parents with issues related to school transfers, behavior problems, busing issues, obtaining paraprofessionals, related services such as occupational, physical, and speech therapies, transition, placement, evaluations and other problems that parents resented. During 2010 we worked closely with parents to determine the suitability of their children’s educational programs. The main goal of this program is to ensure that services provided by the NYC Department of Education to children with disabilities are developed in accordance with the Individuals with Disabilities Education Act and are individualized and reflective of their academic, social and vocational growth. We believe that all children can learn and we promote parental involvement, which is crucial to the progress and achievement of their children with disabilities. We thank those families who contacted Sinergia and became part of our family in 2010 and who allowed us to assist them.
We Are Parents Too
This unique program serves parents with developmental disabilities. It offered 34 workshops throughout the year which covered a range of topics from nutrition, domestic violence, infant development, discipline vs. punishment, child custody issues, etc. The total units of service provided for the year totaled 1,397 to 92 parents. Seventeen parents participated in the recently formed parent support group. This program works to sustain families that are headed by parents with developmental disabilities. We also collaborate with the courts, ACS and legal aid lawyers in helping families with reunification of their children. A recent highlight was our collaboration with the Healthy Families Program of the University Settlement Society of NY.
Home Care
We are so pleased that Home Care Services were once again restored this year. This program has helped 9 families within the past several months and 4 more will start to receive home care services in January that will help them to care for their disabled family member.
Community Habilitation
The At Home Residential Habilitation program (AHRH) was renamed in November of 2010 by OPWDD and is now known as Community Habilitation. Community Habilitation is designed to offer service intervention to people with disabilities either in their homes or out in the community. The program assists consumers with everything from budgeting to healthy meal preparation to guidance with keeping a clean home. The program also underwent some regulatory changes that will make it easier to implement, and the services can now also start in the community as well as the home. This will be helpful on those occasions in which the consumer needs to partake in an activity like shopping or would like to attend a recreational event. At the beginning of the year there were only three consumers who were enrolled in AHRH and they were receiving about 44 hours per week of services. During the year four more persons with disabilities have begun receiving this service and Community Habilitation now provides nearly 95 hours a week of service. We anticipate further growth since this service helps consumers remain in their own homes and in their communities.
Housing Assistance Programs
During 2010 the Housing Department served over 200 families who were facing impending evictions, inadequate and overcrowded housing conditions, needed home repairs and access to available housing opportunities, including information about housing lotteries and low income housing. In addition to our housing assistance services the department held nine housing related workshops through the funding from Department of Housing and Community Renewal. The speakers included personnel from NYC Housing Authority, Human Resources Administration, Housing Preservation and Development, the Downstate Office of Housing Initiatives of OPWDD. Speakers helped empower individuals and families as to their rights and possible entitlements they may be eligible to receive. We are very grateful to OPWD and DHCR for their continued funding of this program, especially in this economic downturn when individuals and families are trying to maintain housing and avoid homelessness.
Overnight Respite Program
Sinergia’s Respite Program has served 22 individuals with developmental disabilities with overnight respite services from January 1-December 21, 2010. We provided 2,464 hours of service to 15 males and 7 females ranging in age from 14-42. The length of stay ranged from overnight to 12 days duration. All the guests enjoyed their stay at the respite apartment and their parents expressed their interest in future stays throughout the year. It is an important service for parents who need to take a break from caring for their children. We have received their phone calls expressing appreciation for the care of their loved ones, especially in cases of dire emergencies or hospitalization of parents. Our Respite Program is equipped with 3 bedrooms and 2 bathrooms ensuring privacy and personal space for our guests. During the spring and summer they enjoyed trips to the pool, they attended street fairs, block parties, movie theaters and picnics in the park accompanied by our staff. In colder weather they enjoyed daily walks in the neighborhood, playing board games, coloring with the staff or watching T.V.
Tier II Program
During 2010 Sinergia served five families in our Tier II Program funded through the NYC Department of Homeless Services. As of July 1, 2010 three families with five children moved into our newly renovated and relocated Shelter apartments. Sinergia’s Tier II Program provides temporary shelter, while the families are required to secure permanent housing with the assistance of the Coordinator of the Tier II Program. The homeless housing system is stressful and requires that the head of the household search for adequate and affordable housing. The staff of Sinergia lends support, links families to services and provides relief to the parents so that they can care for their children with special needs as well as meet the mandates of the shelter system. The families have expressed gratitude for Sinergia’s assistance and are all looking forward to moving into their own permanent homes in the near future. Our Tier II Program attempts the utmost to help families who are homeless and have children with disabilities to regain stability and secure affordable and safe housing and support services.
Technology
In the past year much has been going on in Sinergia’s digital world. It takes quite a bit of resources to keep our computers, phones, copiers, fax machines, televisions, projectors, laptops, simultaneous interpretation equipment etc., running smoothly and the following acquisitions and services helped Sinergia keep pace with the Technology:
1. New Front Line Firewall
2. 10 new computers for use in Day Hab and other programs.
3. New printers
4. Top of the line software (Norton Antivirus, Microsoft Office 2010, Norton Ghost)
5. Over 1000 submitted IT requests
6. 2 new flip video recorders
7. Started to replace computers that are 5 to 6 years old.
8. We also purchased new transmitters and microphone headsets which are part of the simultaneous interpretation equipment used for workshops and other events that need translation.
Advances in Information Technology, both positive and negative, occur daily, and keeping pace with them is a job that requires much attention. A single malevolent virus can spell disaster for the agency and it takes a lot of vigilant work to keep such things at bay. Sinergia has more than 80 workstations between the main office and out in the community and close to 100 people who use these stations for research, communication, data collection, entertainment, investigating community events and the like. Additionally, the maintenance of the machines and other elements that manage the display, printing, copying, scanning and electronic storage of documents and data concerning the hundreds of people that we serve is also very intensive and requires daily monitoring.
A very special note of appreciation to all the staff at Sinergia that worked tirelessly through 2010. Your dedication and hard work made all these achievements possible. Your service to several thousand individuals with disabilities and families helped them to survive with dignity and resilience and for some to even thrive in these difficult economic times.

Autism Initiative
Medicaid Service Coordination (MSC)
During the past year the MSC program experienced a major restructuring due to the financial crisis. Nevertheless during this time the program provided 2841 units of service to 327 individuals with intellectual disabilities in the boroughs of Manhattan, the Bronx, Brooklyn and Queens. The ten MSC staff members helped individuals to meet their goals and desires, to find and keep a home, we linked them to search for jobs, participate in recreational activities, build a circle of friends and to gain access to medical, clinical, and entitlement programs such as Social Security, food stamps. We also assisted families in the guardianship process and in securing other needed services. The MSC staff attended numerous mandated trainings provided through OPWDD and Sinergia, to ensure that disabled individuals as well as their families were able to secure the services and supports they needed. Through these efforts a staff member was able to find a work program for a consumer who had stayed at home the previous six years without engaging in daily activities. Also the program arranged for summer camps for some individuals who had never had a camp experience. Despite having to adapt to new regulations, larger case loads, restructuring (which allows for less time to visit), accompanying and advocating for individuals, the MSC Department continues to engage with and assist individuals with intellectual disabilities to make progress that will lead to more enriched, independent lives.
Residential Services
From January 1, 2010 through December 31, 2010 the Residential Services Program provided over 60 individuals with developmental disabilities with residential services in 38 residential opportunities. These ranged from supervised and supported certified individualized residential alternatives to less restrictive individualized support services in the community. In addition to the residences, Sinergia provided 78,097 hours of direct service to help individuals enhance their daily living skills, ensure their health and safety , oversaw their nutritional needs, budgeting, medication administration, and promoted their independence and integration into the community. Pursuant to our goals of promoting greater independence and increasing the quality of life of individuals, several relocations were made during the year which provided for persons to have their own bedrooms and to move to better, newly built residences. The staff of approximately 65 employees in this department constantly attends development sessions so that they can meet regulatory demands and most importantly so they can meet the individual needs of the residents and enhance their quality of life in community settings.
In Sinergia’s Day Habilitation Program, consistency is an important foundation for progress. While changes in scheduling can be disruptive to the program, the participants demonstrated how well they could adapt to a very big change in February 2010. On Monday, February 1st, Day Habilitation began its program at 2082 Lexington Avenue, on 126th street. After much anticipation and fanfare, Sinergia’s brand new building was ready. That day and the several weeks since then, the members have shown that they don’t adapt to new surroundings by trial and error, but by trial and victory! They quickly learned new transportation routes and braved new bus rides home. When the new elevator was being repaired, they climbed the stairs or took the alternate elevator. It’s as though every participant was determined to make 2082 Lexington a new home. While the neighborhood in Harlem is very different than it was at 29th Street, the participants have embraced change and used it as a springboard for adventure. Day Hab. Groups have volunteered at the Carver Garden on East 124th St., growing fresh vegetables and learning how to prepare them. They’ve visited the library, shopped at the Brand New Mall on 116th St. with Manhattan’s first Target, walked to Yankee Stadium,
Family Care
Family Support (FS)
The Family Support Case Management programs “Direction Services and East Harlem Service Coordination” served 139 families and provided over 3556 hours of case management in 2010. Medicaid isn’t required for FS programs, therefore we are able to serve families that do not have Medicaid and would otherwise remain unserved. During this year we were able to obtain medical, clinical, entitlements, special education, recreational and OPWDD services for the individuals served by the program. One family in desperate straits with a physically handicapped mother who had suffered an amputation with a severely disabled child was able to receive emergency services, respite and OPWDD housing after they were evicted from their home. Another family was assisted with funds to pay rent arrears in order to forestall an eviction. We also referred families for reimbursement for clothing, furniture and other necessities. Most recently we assisted families that don’t qualify for Medicaid because of their income with the Medicaid Waiver enrollment. This enables the family to get prescriptions and medical services not covered by their health insurance as well as OPWDD waiver services. After more than 25 years this program still remains a lifeline for families with children or family members with developmental disabilities. Family Support Services are indispensable for families that need help and struggle to maintain their children and adult family members with disabilities in their own homes.
Family Reimbursement
Sinergia’s Family reimbursement Program is a Family Support Service funded by the NYS Office for People with Developmental Disabilities (OPWDD) and serves families in the Bronx and Brooklyn who have a person with developmental disabilities living at home. The program offers reimbursement funds for the purchase of goods, services and necessities to help the member with disabilities to stay living in the home. In 2010 Sinergia awarded a total of $27,000 in reimbursement funds to 69 families which covered respite care, camp and recreational opportunities, medication, equipment, needed furniture, music therapy. This is a fund of last resort and due to limitations in funding, priority is given to emergencies and to families with very restrictive incomes.
Educational Advocacy
The family support educational advocacy is a program funded by the New York State Office of People with Developmental Disabilities for families living in Manhattan who have children with developmental disabilities. In 2010 we were tremendously satisfied to have been able to help 25 families and provided over 600 hours of intense advocacy to help parents of children with disabilities obtain a great deal of information and guidance so that their children could receive appropriate educational services. Sinergia’s educational advocate was able to assist parents with issues related to school transfers, behavior problems, busing issues, obtaining paraprofessionals, related services such as occupational, physical, and speech therapies, transition, placement, evaluations and other problems that parents resented. During 2010 we worked closely with parents to determine the suitability of their children’s educational programs. The main goal of this program is to ensure that services provided by the NYC Department of Education to children with disabilities are developed in accordance with the Individuals with Disabilities Education Act and are individualized and reflective of their academic, social and vocational growth. We believe that all children can learn and we promote parental involvement, which is crucial to the progress and achievement of their children with disabilities. We thank those families who contacted Sinergia and became part of our family in 2010 and who allowed us to assist them.
We Are Parents Too

Home Care
We are so pleased that Home Care Services were once again restored this year. This program has helped 9 families within the past several months and 4 more will start to receive home care services in January that will help them to care for their disabled family member.
Community Habilitation
The At Home Residential Habilitation program (AHRH) was renamed in November of 2010 by OPWDD and is now known as Community Habilitation. Community Habilitation is designed to offer service intervention to people with disabilities either in their homes or out in the community. The program assists consumers with everything from budgeting to healthy meal preparation to guidance with keeping a clean home. The program also underwent some regulatory changes that will make it easier to implement, and the services can now also start in the community as well as the home. This will be helpful on those occasions in which the consumer needs to partake in an activity like shopping or would like to attend a recreational event. At the beginning of the year there were only three consumers who were enrolled in AHRH and they were receiving about 44 hours per week of services. During the year four more persons with disabilities have begun receiving this service and Community Habilitation now provides nearly 95 hours a week of service. We anticipate further growth since this service helps consumers remain in their own homes and in their communities.
Housing Assistance Programs
During 2010 the Housing Department served over 200 families who were facing impending evictions, inadequate and overcrowded housing conditions, needed home repairs and access to available housing opportunities, including information about housing lotteries and low income housing. In addition to our housing assistance services the department held nine housing related workshops through the funding from Department of Housing and Community Renewal. The speakers included personnel from NYC Housing Authority, Human Resources Administration, Housing Preservation and Development, the Downstate Office of Housing Initiatives of OPWDD. Speakers helped empower individuals and families as to their rights and possible entitlements they may be eligible to receive. We are very grateful to OPWD and DHCR for their continued funding of this program, especially in this economic downturn when individuals and families are trying to maintain housing and avoid homelessness.
Overnight Respite Program

Tier II Program
During 2010 Sinergia served five families in our Tier II Program funded through the NYC Department of Homeless Services. As of July 1, 2010 three families with five children moved into our newly renovated and relocated Shelter apartments. Sinergia’s Tier II Program provides temporary shelter, while the families are required to secure permanent housing with the assistance of the Coordinator of the Tier II Program. The homeless housing system is stressful and requires that the head of the household search for adequate and affordable housing. The staff of Sinergia lends support, links families to services and provides relief to the parents so that they can care for their children with special needs as well as meet the mandates of the shelter system. The families have expressed gratitude for Sinergia’s assistance and are all looking forward to moving into their own permanent homes in the near future. Our Tier II Program attempts the utmost to help families who are homeless and have children with disabilities to regain stability and secure affordable and safe housing and support services.
Technology
In the past year much has been going on in Sinergia’s digital world. It takes quite a bit of resources to keep our computers, phones, copiers, fax machines, televisions, projectors, laptops, simultaneous interpretation equipment etc., running smoothly and the following acquisitions and services helped Sinergia keep pace with the Technology:
1. New Front Line Firewall
2. 10 new computers for use in Day Hab and other programs.
3. New printers
4. Top of the line software (Norton Antivirus, Microsoft Office 2010, Norton Ghost)
5. Over 1000 submitted IT requests
6. 2 new flip video recorders
7. Started to replace computers that are 5 to 6 years old.
8. We also purchased new transmitters and microphone headsets which are part of the simultaneous interpretation equipment used for workshops and other events that need translation.
Advances in Information Technology, both positive and negative, occur daily, and keeping pace with them is a job that requires much attention. A single malevolent virus can spell disaster for the agency and it takes a lot of vigilant work to keep such things at bay. Sinergia has more than 80 workstations between the main office and out in the community and close to 100 people who use these stations for research, communication, data collection, entertainment, investigating community events and the like. Additionally, the maintenance of the machines and other elements that manage the display, printing, copying, scanning and electronic storage of documents and data concerning the hundreds of people that we serve is also very intensive and requires daily monitoring.
A very special note of appreciation to all the staff at Sinergia that worked tirelessly through 2010. Your dedication and hard work made all these achievements possible. Your service to several thousand individuals with disabilities and families helped them to survive with dignity and resilience and for some to even thrive in these difficult economic times.
Tuesday, September 7, 2010
Spotlight on Sinergia's Metropolitan Parent Center
Sinergia's Metropolitan Parent Center (MPC) is a federally funded Parent Training Information Center (PTIC) whose mission is to empower parents of children with disabilities by providing them with knowledge and skills. Our aim is to provide them with information and training and connect them with specific educational services and opportunities that will enhance their child's quality of life.
In February we relocated to a new facility at 2082 Lexington Avenue, near 125th Street, which is at the crossroads of the communities we serve: East Harlem, Central Harlem and the Bronx. In this new location we provide one-on-one assistance and advocacy to parents experiencing difficulties with their child's education. Our staff is bilingual (English/Spanish) which is important because a large percentage of our consumers have limited or no English language skills.
We help families in low-income areas who are traditionally under-served or unserved. They are often the most disenfranchised and face many barriers to service. With our help they are able to receive information, navigate the system and secure the most appropriate services for their children.
We cover the full range of disabilities from moderately to severely disabled, from birth to 26 years of age. Read about a recent success story we had in getting the best care for one of our consumers.
"Helping others has brought a great deal of satisfaction to my life.Three and a half years ago when I started working at Sinergia as a Service Coordinator, I discovered a world that was completely unfamiliar to me, the world of children with special needs and their families. I quickly decided that I wanted to learn more about special education and started taking training workshops that were offered through our agency. During these trainings I got to know parents by listening to their stories. I quickly noticed that most of them shared similar challenges and feelings of frustration by having to struggle to constantly obtain adequate services for their children. My first thought was 'I have to do something to help.'
I tried to learn as much as possible about disabilities and about the skills needed to effectively advocate on behalf of parents and their children.
The Metropolitan Parent Center has given me the opportunity to work with many parents that were having difficulties obtaining a free and appropriate public education (FAPE).
When looking for an educational advocate, parents should look for someone who is committed, knowledgeable and who has good negotiation and mediation skills."

Lizabeth Pardo
"Being an advocate allows me to work in the field of education, which I feel very strongly about. I come from parents with little formal schooling but who placed a lot of importance on an education. As a law student, I studied about the right to an education; I took two independent classes because I believed that by having knowledge, issues of poverty could be overcome.
That was ten years ago, and my experience with my son in public school and my work at Sinergia have deepened my convictions. Although that is the background I bring, it is certainly not at the forefront of my mind when meeting with a family about their child's educational needs. For people with disabilities, access to an education is a right that must often be fought for. I enjoy the many levels that my work involves when working with families individually, both within the New York City school system, and in collaboration with community organizations."
The Ethics of Advocacy
At Sinergia we practice the role of advocacy with a focus on ethics that ensures the work we do with and on behalf of families and children with disabilities is being delivered with the highest standards. Our advocates must:
* Ensure the limits of their role are clearly defined
* Offer honest information and opinions
* Point out weaknesses and strengths
* Identify provisions of the law
* Inform parents of their basic rights
* Assist parents in obtaining consultation or services from a licensed attorney if necessary
* Abide by the decision of the parent
* Use his/her best effort to achieve the goal(s) of the parent
* Conduct advocacy in a civil and professional manner
* Maintain confidentiality
* Work with the family until issues are resolved
What Parents and Professionals Are Saying About the MPC
"From the bottom of our hearts, thank you for your time and dedication, advice and work. May God always bless and protect you. With enormous affection..."
"(Sinergia's) work ethics are outstanding. I have never worked with an advocate agency so efficient and competent before, and believe me I have worked with quite a few".
"I always talk to my friends about Sinergia and I recommend it. A friend of mine is also receiving services now and I know she is very happy with the help she is getting."
"Special thanks to Yesenia Estrella. She always helps me. Any time. She is a wonderful person. Thank you"
In February we relocated to a new facility at 2082 Lexington Avenue, near 125th Street, which is at the crossroads of the communities we serve: East Harlem, Central Harlem and the Bronx. In this new location we provide one-on-one assistance and advocacy to parents experiencing difficulties with their child's education. Our staff is bilingual (English/Spanish) which is important because a large percentage of our consumers have limited or no English language skills.
We help families in low-income areas who are traditionally under-served or unserved. They are often the most disenfranchised and face many barriers to service. With our help they are able to receive information, navigate the system and secure the most appropriate services for their children.
We cover the full range of disabilities from moderately to severely disabled, from birth to 26 years of age. Read about a recent success story we had in getting the best care for one of our consumers.
The MPC Team
Co-Director Co-Director
Godfrey Rivera Cassandra Archie
Educational Advocates
Lizabeth Pardo Yesenia Estrella
Facilitator of Parent Support Group
William Bird Forteza
____________________________
Yesenia EstrellaGodfrey Rivera Cassandra Archie
Educational Advocates
Lizabeth Pardo Yesenia Estrella
Facilitator of Parent Support Group
William Bird Forteza
____________________________
Meet the Education Advocates
"Helping others has brought a great deal of satisfaction to my life.Three and a half years ago when I started working at Sinergia as a Service Coordinator, I discovered a world that was completely unfamiliar to me, the world of children with special needs and their families. I quickly decided that I wanted to learn more about special education and started taking training workshops that were offered through our agency. During these trainings I got to know parents by listening to their stories. I quickly noticed that most of them shared similar challenges and feelings of frustration by having to struggle to constantly obtain adequate services for their children. My first thought was 'I have to do something to help.'
I tried to learn as much as possible about disabilities and about the skills needed to effectively advocate on behalf of parents and their children.
The Metropolitan Parent Center has given me the opportunity to work with many parents that were having difficulties obtaining a free and appropriate public education (FAPE).
When looking for an educational advocate, parents should look for someone who is committed, knowledgeable and who has good negotiation and mediation skills."

Lizabeth Pardo
"Being an advocate allows me to work in the field of education, which I feel very strongly about. I come from parents with little formal schooling but who placed a lot of importance on an education. As a law student, I studied about the right to an education; I took two independent classes because I believed that by having knowledge, issues of poverty could be overcome.
That was ten years ago, and my experience with my son in public school and my work at Sinergia have deepened my convictions. Although that is the background I bring, it is certainly not at the forefront of my mind when meeting with a family about their child's educational needs. For people with disabilities, access to an education is a right that must often be fought for. I enjoy the many levels that my work involves when working with families individually, both within the New York City school system, and in collaboration with community organizations."
____________________________
The Ethics of Advocacy
At Sinergia we practice the role of advocacy with a focus on ethics that ensures the work we do with and on behalf of families and children with disabilities is being delivered with the highest standards. Our advocates must:
* Ensure the limits of their role are clearly defined
* Offer honest information and opinions
* Point out weaknesses and strengths
* Identify provisions of the law
* Inform parents of their basic rights
* Assist parents in obtaining consultation or services from a licensed attorney if necessary
* Abide by the decision of the parent
* Use his/her best effort to achieve the goal(s) of the parent
* Conduct advocacy in a civil and professional manner
* Maintain confidentiality
* Work with the family until issues are resolved
____________________________
What Parents and Professionals Are Saying About the MPC
"From the bottom of our hearts, thank you for your time and dedication, advice and work. May God always bless and protect you. With enormous affection..."
"(Sinergia's) work ethics are outstanding. I have never worked with an advocate agency so efficient and competent before, and believe me I have worked with quite a few".
"I always talk to my friends about Sinergia and I recommend it. A friend of mine is also receiving services now and I know she is very happy with the help she is getting."
"Special thanks to Yesenia Estrella. She always helps me. Any time. She is a wonderful person. Thank you"
Friday, September 3, 2010
MPC: Real Stories From Real Parents
Transfer to District 75 Stopped Using Mediation
Daniel was an 8th grade student in a 12:1:1 program in a community school when his parents contacted Sinergia's Metropolitan Parent Center (MPC). They needed our help because their son was being recommended for a more restrictive 8:1:1 program in District 75 with a classification of emotional disturbance (ED). The parents did not know 8:1:1 programs are intended to serve students with autism, but were told that the smaller class would provide Daniel with more assistance.
Daniel’s parents, now represented by the MPC, rejected both the program recommendation and the classification of ED. However, soo after that Daniel was suspended by the school, in what looked like retaliation. Undeterred, the parents requested a Functional Behavior Assessment (FBA), which they had learned was a document required by law before an Individualized Education Plan (IEP) team can consider a more restrictive placement for behavioral reasons. As previous meetings had been very heated, and the FBA and Behavior Plan would halt any school transfer, getting the school to support Daniel in his current program was going to be a challenge.
The MPC suggested the parents consider mediation as a voluntary dispute resolution process and after some convincing both parties agreed to it. Although not a smooth process, mediation allowed both parties to express their concerns and resulted in a redirection of efforts from pushing Daniel from his current school to providing him with the support and services he needed. He received counseling from a school psychologist with whom Daniel was able to develop a trusting relationship with, and was also assisted by his tireless, dedicated teacher. Within months progress was evident. Today Daniel is in a high school for the arts and is doing fantastic work!
Daniel was an 8th grade student in a 12:1:1 program in a community school when his parents contacted Sinergia's Metropolitan Parent Center (MPC). They needed our help because their son was being recommended for a more restrictive 8:1:1 program in District 75 with a classification of emotional disturbance (ED). The parents did not know 8:1:1 programs are intended to serve students with autism, but were told that the smaller class would provide Daniel with more assistance.
Daniel’s parents, now represented by the MPC, rejected both the program recommendation and the classification of ED. However, soo after that Daniel was suspended by the school, in what looked like retaliation. Undeterred, the parents requested a Functional Behavior Assessment (FBA), which they had learned was a document required by law before an Individualized Education Plan (IEP) team can consider a more restrictive placement for behavioral reasons. As previous meetings had been very heated, and the FBA and Behavior Plan would halt any school transfer, getting the school to support Daniel in his current program was going to be a challenge.
The MPC suggested the parents consider mediation as a voluntary dispute resolution process and after some convincing both parties agreed to it. Although not a smooth process, mediation allowed both parties to express their concerns and resulted in a redirection of efforts from pushing Daniel from his current school to providing him with the support and services he needed. He received counseling from a school psychologist with whom Daniel was able to develop a trusting relationship with, and was also assisted by his tireless, dedicated teacher. Within months progress was evident. Today Daniel is in a high school for the arts and is doing fantastic work!
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